Update On Hailey's Heart: Could This Be Our Miracle?

Dear Hailey, 

You and I went to your 6 month heart check up today and you did so well! We had 2 sets of stickers stuck on: one to listen to your heart and the other to take a look at your heart. 

You melted the nurses' hearts when you would show them Mermie and would flex your muscles when they asked to see them before taking your blood pressure. 

When the nurses measured how tall and heavy you were, you also felt that they needed to know that you are 3 years old. You were not shy at all today! 

Afterwards, the Dr. came in to talk to us. She asked about how you were doing generally and then suggested that we double your meds so that you are getting the amount of medicine that you should be receiving. And then she shared some potentially good news. 

She told me that she was going to present your case in front of other cardiologists because she's discovered this membrane in one of the images that may be cinching your heart, causing it to be restricted. Don't ask me to name the membrane or where it is specifically, because when I heard this news, I was instantly filled with hope and my thoughts started to go in 1,000 directions. I did end up asking her that if this was the case, and the membrane was removed, your heart would function as normal? She nodded and then added that even if they opened the heart and found that the membrane is not causing the problem, they would most likely remove some of the thickened heart tissue anyway, so the surgery would not be done in vain. 

So ya'll, Hailey might not have HCM afterall!  I want to thank all of our friends and family who have been praying for you because this is looking like a miracle to me. (Keep the prayers coming because this is just still a haunch) Heart surgery sounds scary, but I have faith that it will all be ok, plus heart surgery is w-a-a-ay less scarier than heart transplant. 

Hannah, I think I need to talk to you a bit more about Hailey's condition. You shared about Hailey's condition today in martial arts class and you seemed very nervous about Hailey getting COVID. When I updated you on her condition, you looked a bit relieved, but seemed very sad about the possibility of Hailey having to get heart surgery. After a brief cry, you thought about it, looked up at me and said, "Well, we better make sure we get the best doctor to operate on her!" 

And another story I'd like to share has nothing to do with Hailey's heart, but has to do with Hannah's care for plants. This past weekend, we went in with our neighbor and hired a company to replace our side fence, the fence that makes up the walls of the "nature club." This is a place where you guys will spend hours, pulling up weeds and making random things with them. We had picked out a few ferns and African violets to spruce up the space and they happen to be near the fence line. As the workers pulled out various tools to complete the job, you guys would continue to go back and watch them every time you heard a new sound. Then, Hannah, you came and told me that one of the workers was standing on our new plants. I jokingly told you that if it bothered you, you could politely ask the workers to watch out for the plants. You asked me to go with you. I chickened out and said that it didn't bother me too much, so if it bothers you, you can go. I didn't think you would do it, but you slipped on your shoes and went outside. 

"Excuse me, Hi, when you guys are working, can you please watch out for our plants? " 

"Oh, ok, no problem." 

"Thanks." 

And then I heard the front door slam shut quietly. You came in, beaming and I was beaming also so hard on the inside. I've always been one to stay quiet and not stir trouble, but recently I've found my voice and considering how you have a lot of my genes, I've been encouraging you to do so too, so this was a proud parenting moment. 

Well, That's all I'm going to post for now. This is good enough news for a single post! 

Praying that a pesky membrane is the culprit to all of this. 

Love,

Mommy